PAEDS Small Talk
Being a parent is a juggle. But what about when your child has an illness, injury or disability? Grace & Sarah are mothers and paediatric nurses in this podcast we chat with parents, carers and health professionals to shine a light on the many families that also manage hospital admissions, specialist appointments, waiting for diagnosis and navigating a world that might not be as set up for their family. We want to know what life is like for them, and understand how we can support them.
Email: contact@paeds.education
Website: www.paedseducation.com.au
Instagram: @paeds_firstaid
PAEDS Small Talk
Chantelle - Solving the healthcare puzzle with a child who has complex & rare conditions
Chantal Donnelly has a strength that could move mountains and a positivity that will fill your day with such joy. Her beautiful son Soul was born with a rare condition called SENS, only diagnosed this year after 18 months of investigations, discovering new symptoms and piecing together a very complex puzzle.
In this episode we chat about Chantal's textbook pregnancy and birth and the immediate period following birth that revealed something was not quite as 'textbook' for her son.
Chantal shares her insights on what has helped her to manage the trauma of having her newborn suddenly transferred to another hospital shortly after birth, the journey of discovering Souls rare diagnosis and the complex medical world that she currently navigates to help Soul reach his full potential.
This episode supports the charity Face Quality International who are working to create a world where those with facial disfigurements are free to be themselves and thrive https://faceequalityinternational.org/
visit our website at www.paedseducation.com.au
