PAEDS Small Talk
Being a parent is a juggle. But what about when your child has an illness, injury or disability? Grace & Sarah are mothers and paediatric nurses in this podcast we chat with parents, carers and health professionals to shine a light on the many families that also manage hospital admissions, specialist appointments, waiting for diagnosis and navigating a world that might not be as set up for their family. We want to know what life is like for them, and understand how we can support them.
Email: contact@paeds.education
Website: www.paedseducation.com.au
Instagram: @paeds_firstaid
PAEDS Small Talk
Kate - Advocating for your child with a disability
Join us as we chat with Kate, a paediatric ICU nurse and friend of ours who has been on an incredible journey. As an adult who had a congenital heart disease herself, she brought a unique perspective to her career as an ICU nurse, offering support and encouragement to her young patients and their families.
When her first son Josh was born, he needed a stint in the special care nursery, and Kate balanced the roles of nurse, mother and patient as she watched her son struggle and she tried to find her voice to advocate for him. Kate describes what has worked for her over the years of Josh's life and as his needs have changed, from needing an tube for feeding as a newborn to needing a place where he would be welcomed and encouraged as he entered into the schooling phase of his life.
We really loved talking to Kate about this and discovered so much more about her journey into motherhood and hope you enjoy listening to this podcast too.
Resources we speak about in this podcast
https://rarechromo.org
Kates chosen charity
https://www.thesisterhoodproject.com.au
visit our website at www.paedseducation.com.au